• yannic@lemmy.ca
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    10 days ago

    The provincial governments in charge of our single payor health care system made the conscious decision to keep the liquor marts open while banning in-person sales of tea kettles (and we call ourselves a commonwealth nation!) during a pandemic.

    I think our single payor at least partially did this to themselves.

    • jonne@infosec.pub
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      10 days ago

      I’m pretty sure people would’ve stormed parliament if you banned alcohol sales.

  • Ulrich_the_Old@lemmy.ca
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    9 days ago

    If you are going to make alcohol consumption a bar to a liver transplant without making alcohol illegal you should all go fuck yourselves. You had a drink and you should die should not be a thing.

    • LustyArgonianMana@lemmy.world
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      9 days ago

      This isn’t what happened though. She was addicted to alcohol, per her partner, got diagnosed with needing a new liver, she immediately quit alcohol, and they denied her anyway even though quite a bit of time had passed while she was sober. I am unaware if her liver disease was because of the previous regular alcohol use. It wasn’t just 1 drink though.

      Yes, organ donation is messed up. I met a girl dying in hospice once. She needed a new kidney. Genetic stuff, and then when she was 15 she tried to kill herself with Tylenol. She got her first transplant before the suicide attempt. She was denied a second one due to the suicide attempt itself. There are only so many organs in the world. She died in agony in hospice, young and covered in calcium deposits.

      We punish substance use and mental health so harshly in this country. No one deserves the death penalty for previous substance use, especially for alcohol which is ancient af. It’s horrible she was denied when there was a liver already available.

      • CileTheSane@lemmy.ca
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        9 days ago

        We punish substance use and mental health so harshly in this country

        It’s not punishment, any chronic illness will make someone ineligible for an organ transplant. It’s not saying it’s that person’s fault, it’s a situation of “2 people need this organ, which ever you choose the other will die in agony, one is more likely to live twice as long as the other.”

      • Yaztromo@lemmy.world
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        8 days ago

        It’s horrible she was denied when there was a liver already available.

        Any full cadaver liver that could have gone to this woman didn’t get thrown into the garbage — it went to someone else who would have died without it.

        As for the living donor liver her boyfriend offered, even though he was a match her level of liver failure likely meant that the partial liver her boyfriend could have donated wouldn’t have been successful. Living donors still need a liver for themselves, and we each only have one full liver — so the best they could have done is given her half a liver. Her condition was too poor for this to have a likely positive outcome, which was why this was also denied.

        It sucks, but there aren’t enough donor livers for everyone who needs one. The cadaver liver she was denied however would have gone on to save the life of someone else you’re not hearing about in the press — someone else who may have died without it.

        If the unfairness of it all upsets you that much, then make sure you’ve signed your organ donor card, and make sure your family members know and understand your desire to be an organ donor. And encourage the people you know to do the same. This is only a problem because there aren’t enough donor livers for everyone — when you have n livers, at best you can save n lives — and thus having a larger number of donor livers allows for more lives to be saved, with fewer qualifications.

        • LustyArgonianMana@lemmy.world
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          8 days ago

          It’s hard to say if she would have lived or not.

          I think a bigger discussion about medical gatekeeping and bodily autonomy is warranted here

          I have been an organ donor since my first driver’s license

      • repungnant_canary@lemmy.world
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        9 days ago

        From my limited knowledge organ donation criteria are horribly restrictive on a personal scale but unfortunately make sense on the macro scale. Organs are such a scarce resource that as I understand there’s no other option.

        This girl’s death was undoubtedly a tragedy, but as fucked up it’s to say if she lived someone else would probably die in a similar agony. Was she treated fairly - I don’t know, can we make this system better - I unfortunately also don’t know.

        • Saledovil@sh.itjust.works
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          8 days ago

          One easy way would be to make organ donation opt out instead of opt in. As in, if you do nothing, you’re an organ donor if you end up brain-dead, and if you don’t want to, you have to explicitly opt out. Alternatively, we could just say any brain-dead person may have their organs harvested, regardless of what they declared while still alive. After all, you don’t need the organs anymore once you’re brain-dead. (I’m specifying brain-dead, because if you’re completely dead, then the organs are also useless)

          • repungnant_canary@lemmy.world
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            8 days ago

            That would help to some extent with scarcity in opt-in countries. But there are already opt-out countries which still face the same dilemma. Because if you’re even one organ short how do you fairly decide who’s gonna die… Can you even fairly decide about someone’s life and death…

  • Mycatiskai@lemmy.ca
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    10 days ago

    I’m quite torn on this issue, my sister donated her kidneys and liver when she died. On one hand people who need an organ, need an organ but on the other hand deceased persons organs are so rare that they should go to those with liver diseases they have no medical control over before those who are sick from an avoidable disorder.

    I don’t like to think of my sister’s liver going to someone who would abuse it over someone who just happen to have a genetic liver issue. She lived a life too short bringing joy and education to many children, her final act saving others would be soured by someone wasting it.

      • tiredofsametab@fedia.io
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        10 days ago

        It is, or at the very least is a symptom of another one. I have all kinds of addiction issues which is why I must be super careful in my life. I am a former alcoholic who used to drink nearly every day from basically after work until I was too tired to keep going. I also have ADHD and possibly ASD (the latter not officially diagnosed as of now). There seems to be some evidence that those can play a role in addiction.

      • Mycatiskai@lemmy.ca
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        10 days ago

        Some could consider it a mental disorder.

        Compared to an autoimmune disease that attacks organs and glands, I’d think the autoimmune patient should be top of the list. Probably good that I’m not on death panels though.

      • n2burns@lemmy.ca
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        10 days ago

        I completely agree that alcoholism is a disease, and as with any other disease, we have to look at the survivability if she got the transplant.

        Let’s be honest, while the article tries to be favourable to the patient, you can piece together the facts and see that her odds weren’t good. While she’s been sober since she got the diagnosis, it appears she was immediately hospitalised which tells us she was in very rough shape and has only been sober while in the hospital. Even if she was able to stay sober, it looks like the odds with a partial transplant aren’t great.

    • Fleur_@lemm.ee
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      10 days ago

      Honestly I find that the opposite of grim, I wish more problems were solved in a cold and calculated way.

      • VirtualOdour@sh.itjust.works
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        9 days ago

        Like killing disabled people because it’s cheaper, farming slaves to provide cheap labour, that sort of thing?

        There a good reason we tend to prefer the more humane and emotionally guided solutions over the mathematically most efficient.

  • ZC3rr0r@lemmy.ca
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    10 days ago

    It’s incredibly sad to hear someone die of a preventable cause this young, but I can also somewhat relate with the people who reviewed her application.

    If a living donor wouldn’t have been sufficient, they’ve now created two patients where they previously had one, and without improving the primary patient’s condition. It makes sense that a donor organ from a deceased donor would be preferable.

    That said, the current requirement for the patient to meet deceased donor standards for transplantation to be eligible to use a willing living donor make no sense. Both situations should have their own unique criteria, given that a living donor situation involves different risks for both the patient and the donor than a deceased donor situation would incur.

    Ultimately this whole situation boils down to a scarcity situation though. If we want to solve this, it will require more people to register themselves as a donor and a review of the eligibility criteria as soon as more donors are available.

      • Nik282000@lemmy.ca
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        10 days ago

        It’s not just acceptable, it’s encouraged by the province to keep people from rage quitting their lives here.

  • HelixDab2@lemm.ee
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    10 days ago

    I’ve known entirely too many alcoholics that have had too many wake-up and come-to-Jesus moments, only to go back to drinking as soon as the immediate crisis is over. Change only comes when the alcoholic wants to change for their own reasons, not due to external factors.

    Livers are a limited resource. Wasting a donor’s liver on a person that us unlikely to stop drinking–despite their protestations–means that another person doesn’t get one. It may seem like a cruel calculus, but it’s the only reasonable way to ration a scarce resource. It doesn’t matter if alcoholism is a disease, or you think that it’s a moral failing; the end result is the same.

    • chryan@lemmy.world
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      10 days ago

      This was my initial opinion until I read the whole article.

      “I got my blood tested, I had MRI scans, I had a CT scan, I had ultrasound and blood compatibility test with her. I was a match,” said Allan.

      Transplant guidelines in Ontario and much of Canada require patients with ALD to first qualify for a deceased donor liver. If they don’t meet that criteria, they aren’t considered for a living liver transplant, even if one is available.

      Her partner was a willing donor, wanted to give her his liver and was prevented from doing so. So yes, this is a cruel take.

      • OsrsNeedsF2P@lemmy.ml
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        10 days ago

        Question: are there any countries where this is allowed? Would they have been able to go abroad and do this operation?

        • chryan@lemmy.world
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          10 days ago

          I don’t know enough to be able to answer your question.

          However, even if you did find a country you could do this in, you’d have to deal with the cost and time required to travel there, consult with the local doctors, get the surgery scheduled, perform the surgery, and remain for post-op care - all of which would be likely out of their own pocket.

          Canada has universal single payer health care system and I have no idea how they deal with medical procedures done outside the country. I highly doubt they would cover unless they were on private insurance that allowed it.

          Not everyone has the means to do what you suggest unfortunately.

      • idunnololz@lemmy.world
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        10 days ago

        If you keep reading it gives a reason why this is a requirement. Now whether you agree with the doctors or not is up to you but there is at least a reason for this.

        But doctors say that people with severe liver disease from alcohol use may need more than just a partial living liver donation to thrive.

        “The sicker someone is, the more they benefit from getting an entire liver from a deceased donor, as opposed to part of the liver from a living donor,” said Dr. Saumya Jayakumar, a liver specialist in Edmonton and an Associate Professor in the Faculty of Medicine & Dentistry at the University of Alberta.

        “On the off chance their (living) liver doesn’t work, they urgently get listed for a deceased donor,” said Jayakumar. "We need to make sure that everyone who is a candidate for a living donor is also a candidate for a donor graft as well, " she added.

        From this, the reasoning appear to be this: there is a high risk that the living liver transplant will not take. In this case the patient may be at risk of dying instantly and thus need another liver transplant. Since the candidate doesn’t not qualify for this other transplant, in the case where the transplant does not take, the patient will die instantly. This is in contrast with the patient being terminally ill however given time to live out the remainder of their life.

        • wise_pancake@lemmy.ca
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          10 days ago

          I guess then the question should be is that worse than definitely dying now, and where does this cross into the patient having the right to request their own treatment?

          I will always defer medical guidance to medical professionals, I know nothing in comparison to them.

          • Lumisal@lemmy.world
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            10 days ago

            It is worse.

            If the living partial liver doesn’t take hold, it does off and becomes necrotic, and would need another surgery to take out or it’ll become necrotic and they’ll die of sepsis. It’s also unlikely they’d survive such second surgery, due to the already existing liver failure + first surgery trauma.

            In this case, you’d be asking doctors to directly kill the patient in a more painful way for a very tiny chance that it may save them, on top of if they do survive, assuming they don’t relapse into alcoholism and die anyway. All while technically injuring someone else (the live donor).

            • wise_pancake@lemmy.ca
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              10 days ago

              Thank you, that does sound like an awful way to die.

              I try to never assume I’m smarter than others for seeing the “obvious” path. I had a coworker in another department once call me out for saying “why don’t you just” and it’s stuck with me since.

        • LordGimp@lemm.ee
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          10 days ago

          This is a bunch of CYA from the hospital that got a woman killed. The article talks about how transfer success rates are up around 80-85%. That’s just for the 6% of people who magically fit through all the “qualifications” the hospital has decided determine whether you get to live. This lady had a doner tested and lined up, but was rejected on the “off chance” (read: low probability) that IF the transplant failed, she would almost certainly die without an immediate whole liver transplant. So the fuck what? Her options were to maybe die from surgery or absolutely 100% die an agonizing slow death from liver failure. The hospital took away her ONLY chance at life. This is murder by committee and I hope the estate sues the entire hospital into the ground.

            • LordGimp@lemm.ee
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              8 days ago

              Is a 15% chance of death during the surgery lower than the 100% chance of death if she doesn’t get the surgery?

              Yes. Yes it is. It is THE lowest possible chance of death she had among her remaining options.

      • HelixDab2@lemm.ee
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        10 days ago

        As someone else already pointed out, if the transplant from the living donor failed or had complications, now you have two people that need livers. It puts a healthy person at risk for a very low chance of a positive outcome. If they were paying out of their own pocket, then I’d say sure, go ahead, blow your own money on it, risk your own life and health. But they aren’t.

    • seathru@lemmy.sdf.org
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      10 days ago

      Her partner was willing to be a donor, it wasn’t taking a liver from someone else on the list. So while you may be correct; That argument is moot.

      • Nik282000@lemmy.ca
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        10 days ago

        Healthcare is for profit. Doctors, nurses, surgeons, consumables, hospitalization, antibiotics, follow ups all get charged to OHIP at a profit for the healthcare provider.

        If we had actual public healthcare, where hospitals and doctors are not private businesses, maybe we could spend more mony on treatment and rehabilitation for problem cases.

      • HelixDab2@lemm.ee
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        10 days ago

        IIRC, there are ongoing experiments with organs are being grown in cloned animals; the animal is slaughtered, and the organ is harvested. Maybe someday they’ll be more readily available and renewable than they are now.

        …At least for the wealthy that can afford to have farms of cloned animals.

        • chingadera@lemmy.world
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          10 days ago

          It will always be insane to me that today’s rich people would rather be less wealthy as long as they are more wealthy than everyone else as opposed to being even more wealthy with everyone else if we all just worked together and had the freedom to create and be innovative.

  • honeybadger1417@lemmy.world
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    10 days ago

    I donated a kidney to a friend earlier this year. The reason his kidneys failed wasn’t anything he was at fault for, but even if it had been because of poor decisions he’d made in the past, I still would have given him one of mine. Because people deserve second chances. I can understand not wanting to give a recovering alcoholic a deceased donor’s liver, when someone else could receive that liver, instead. But this woman’s partner was a match and was willing to donate to her. What’s the harm in that? That isn’t a liver that could have gone to someone else who needed it. It’s a donation that would have either gone to her or no one else. No one could have lost out of the donation had been carried out. This was just cruelty, and now someone is dead. And for what? Because there’s a 15% chance (according to studies the article mentioned) that she might have started drinking again???

    • Breadhax0r@lemmy.world
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      10 days ago

      It’s not super clear, but the article makes it sound like if a partial graft from a live donor fails, then the recipient is automatically fast tracked for a new transplant from a deceased donor.

      If that’s the case then maybe policy should be changed in the case of alcohol abuse.

      • CommanderCloon@lemmy.ml
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        10 days ago

        The policy isn’t there just to be extra nice, it’s because otherwise the patient dies without a liver.

        Since she was too sick for a partial liver transplant, and not eligible for a dead donor full liver transplant, she would have just died.

        It might seem cruel but the same is done for a lot of other procedures; if the chance of you dying in surgery is way too high, doctors won’t take the risk, they’re not executioners.

        It’s not a moral judgement about her alcoholism, the same would have been true if she had a cancer no surgeon would take on.

      • Brekky@lemmy.world
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        10 days ago

        In the article, it shows that the hospital spent significantly more slowly letting her die than the average cost of the transplant.

        • n2burns@lemmy.ca
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          10 days ago

          The comparison is apples and oranges. They only include the cost of the surgery itself, not the cost of after-surgical care, the potential cost of complications to both the patient and the donor, etc. Then there’s the cost if the partial liver donation doesn’t take, or if the patient relapses.

          Obviously, there’s also a lot of potential upside to having the patient survive, I just don’t think the odds of that were all that high.

  • Swordgeek@lemmy.ca
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    9 days ago

    There are more people who need transplants than there are organs, so the medical profession has to make decisions about who to deny. This was a reasonable decision, in my opinion.

    • i_love_FFT@lemmy.ml
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      9 days ago

      In Canada, drinking more than 3 drinks per week is medically considered “high alcohol use” for a woman… (6 for a man). This limit keeps getting lower year after year

      If this can prevent you from getting organ transplants, then it encourages lying to your medical doctor about your current habits… That lady was not considered alcoholic, she just used alcohol in greater amount than the limit considered acceptable by doctors.

      Latest stats show that almost 4 out of 5 people has exceeds that limit at some point in their life. This woman died only because she was honest with her doctor about her alcohol use. (Note that the article says her partner was a compatible donor but the system refused to accept him because she used alcohol. It’s not about lacking donors.)

      • z00s@lemmy.world
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        9 days ago

        The only genuine hint to the real reason of the refusal was “minimal abstinence outside of hospital”.

        Let me ask you bud, if you needed a liver transplant to continue living, would you have even one drink per week, or would you just quit completely?

        Very biased article.

        Plus, regardless of her husband being compatible, it still costs the state tens of thousands for the operation. In no way would it be ethical to put a new liver in someone who refuses to completely abstain from alcohol.

        • areyouevenreal@lemm.ee
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          9 days ago

          That’s absurd. Refusing someone a transplant because they used to drink more than 3 drinks a week before they knew they even had liver problems is completely absurd. Calling her an alcoholic for that is even more absurd. What in the world are these people or you thinking?

          • racemaniac@lemmy.dbzer0.com
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            9 days ago

            Are you on purpose missing the point?

            The point the person you replied to made is that she didn’t completely stop drinking alcohol once she was diagnosed to have a terminal liver disease due to alcohol use.

            So first of all, she must have drank a lot more than 3 drinks a week to have terminal liver disease in her 30s that’s due to alcohol (yes, all of that is in the article)

            But the issue is she didn’t stop drinking after being diagnosed, she reduced her consumption but didn’t stop it.

            If any of the above is incorrect, feel free to correct us, but making a point that’s completely missing the facts that are being talked about here doesn’t add anything to the discussion.

            • areyouevenreal@lemm.ee
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              8 days ago

              The first point is correct. The second one is shown to be wrong in the second paragraph.

              The issue here is you need to have stopped 6 months or more before, and she was only diagnosed 5 months before she died.

          • z00s@lemmy.world
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            8 days ago

            “minimal abstinence outside of hospital”. That means she was still drinking.

      • gamermanh@lemmy.dbzer0.com
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        9 days ago

        This woman died only because she was honest with her doctor about her alcohol use

        No, and it even says so in the article

        She quit about 5 months before her death when transplants require 6-12 months of sobriety. She was drinking regularly with the fucked up liver before that diagnosis, and liver damage isn’t something that just suddenly appears.

        She kept drinking despite what would have been intense cramping pain and a slow death, thats why she was denied (addiction) and ultimately died

        Note that the article says her partner was a compatible donor but the system refused to accept him because she used alcohol

        And as the article also says it’s incredibly dangerous for someone to get a live-donor transplant when they’re in bad shape like she was, as failure of that means they’ll need to let her die on-table or transplant a good dead one into her (which she was denied for, due to her drinking)

        It’s sad, but this woman died to alcohol abuse, pure and simple

        • Cataphract@lemmy.ml
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          9 days ago

          That’s a lot of vague statements you’ve repeated from the article. What’s drinking “regularly” (this was before the diagnosis as you’ve stated)? “She kept drinking”, what does that mean? How much alcohol was she consuming? Did she have a sip of her friends wine and was honest about it so was rejected?

          as the article also says it’s incredibly dangerous for someone to get a live-donor transplant when they’re in bad shape like she was, as failure of that means they’ll need to let her die on-table or transplant a good dead one into her

          Where does it say that? You’ve completely twisted the statements.

          “On the off chance their (living) liver doesn’t work, they urgently get listed for a deceased donor,” said Jayakumar. "We need to make sure that everyone who is a candidate for a living donor is also a candidate for a donor graft as well, " she added.

          Huska’s time at the Oakville hospital likely cost over $450,000 - ($3,592 per day for ICU care) with an additional 61 days in a ward bed which likely cost about $1,200 a day, A liver transplant in Ontario is pegged at about $71,000 to $100,000 in Ontario based on data from 2019.

          In 2021, 15.6 per cent of Canadians over 12 engaged in heavy drinking – a term defined as five or more drinks for males, or over four for females, on one occasion at least once per month in the past year.

          Heavy drinking is drinking ONCE per month in the past year. If this is based off of before her diagnosis, you’re gonna exclude like 80% of the working population who actually does go out for drinks or private occasions (unless they just lie which I guess they should’ve in this situation). Between the price of keeping them alive but not fixing the problem and there being no “review” process for decisions, I would categorize this as a bad system that allowed a preventable death from an alcohol related disease to continue.

      • Landless2029@lemmy.world
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        9 days ago

        That’s total bullshit. As a IT professional I have a nightly drink after work for self medication. Never two. Just one.

        • Wahots@pawb.social
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          9 days ago

          Just do what I do and put it in that deep cupboard above the fridge. Then forget about it for literal years by mistake. It’s doing wonders for my health. Just wish I could do a version of that for my bad sleep schedule.

        • kofe@lemmy.world
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          9 days ago

          I’m guessing you can stop at any time if you want to? I’ve known older healthcare professionals that have approved and even encouraged one drink a night, but our understanding of the effects of drinking has evolved. I doubt doctors keeping up with the science would encourage it at this point. It would be like having someone come in that’s overweight. It doesn’t mean you’re unhealthy now, but it may be a factor that needs to be kept in check and working on it could prevent issues in the future.

          • Landless2029@lemmy.world
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            9 days ago

            Yes I can and have stopped. I drink 2-5 times a week and it’s one 40 proof 1oz (not a shot 1.5oz) over rocks with a bit of soda. Same or less than a beer.

            This isn’t two shots neat daily or a six pack of beer. Sometimes I go a week without. Other times it’s 5 times a week.

        • VirtualOdour@sh.itjust.works
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          9 days ago

          Just remember if a doctor ever asks then lie and say only on friday, there’s a few things in life you absolutely have to lie about because the system is not designed to care about people.

          Here in the uk never admit to smoking weed to a medical professional, never admit to even so much as thinking about any form of self harm, delusions, emotional regulation issues… it can come back decades later and fuck you over.

          • prole@lemmy.blahaj.zone
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            9 days ago

            This is generally pretty bad advice.

            I mean I get where you’re coming from, and I cannot speak to what it is like in the UK (I can only speak as a man in the US), but you should not lie to your doctor.

            If you see a doctor, and they start treating you differently after finding out that you smoke weed, then you find another doctor.

            • BreathingUnderWater@lemmy.ca
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              8 days ago

              Unless you’re in Canada and there’s a doctor shortage and you can’t just shop around for a different family doctor if you don’t like your current one. If you’re lucky enough to even have a doctor here…

          • areyouevenreal@lemm.ee
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            9 days ago

            Wait what happens if you admit to smoking weed? I thought we had doctor patient confidentiality. I’ve had some mental issues in the past, though not to the point of self harm. What happens if I admit these? I also live in the UK and this is concerning.

    • Ava@beehaw.org
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      9 days ago

      I’d be inclined to agree, except that her partner wanted to donate HIS liver and was prohibited from doing so as a living donation due to the alcohol use determination.

  • can@sh.itjust.works
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    10 days ago

    Using the most recent data from the Canadian Institute for Health Information on hospital bed costs (2016), Huska’s time at the Oakville hospital likely cost over $450,000 - ($3,592 per day for ICU care) with an additional 61 days in a ward bed which likely cost about $1,200 a day

    A liver transplant in Ontario is pegged at about $71,000 to $100,000 in Ontario based on data from 2019. “It’s a shame that so much money was spent keeping her alive under such horrendous circumstances and putting her family and her partner under such stress when the remedy was a lot cheaper and could have happened much, much sooner,” said Selkirk.

    The survival rate of patients with alcohol-related liver disease who receive a deceased donor liver transplant has steadily improved to reach 80–85 per cent at one year after a transplant.

    Can anyone make this add up?

  • Nuke_the_whales@lemmy.world
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    9 days ago

    Selkirk said she and Allan are both discussing a legal challenge to the liver transplant guidelines for those with alcohol use disorder “with people who have their own living donor.” “It’s not fair and it’s not right, and hopefully we’ll change that policy,” Selkirk said.

    Even if her apartment could donate his own liver, it should still go to a better recipient. If anything he should be donating anyways to honor her and save a life

    • DefederateLemmyMl@feddit.nl
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      9 days ago

      Even if her partner could donate his own liver, it should still go to a better recipient

      That’s nonsense, because the partner would not donate his liver if it went to someone else.

      • JasonDJ@lemmy.zip
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        9 days ago

        Right? Like I would donate my liver to my kid, or my spouse, without even questioning it.

        But if the doctor told me they can’t have it (for some reason other than incompatibility), and they died? Fuck them. I’d de-register as an organ donor out of spite.

        • driving_crooner@lemmy.eco.br
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          9 days ago

          Donating an organ is a pretty invasive operation that can have a lot of complications, doctors aren’t only taking the recipient health, but the donor too, in the equation.

          • DefederateLemmyMl@feddit.nl
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            9 days ago

            We’re explicitly talking about a situation where the donor is suitable. So I don’t know what kind of information you’re trying to add here.

    • Skates@feddit.nl
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      9 days ago

      You (or the committee of doctors) don’t decide who is a better recipient for my goddamn organs. You can make whatever the fuck ethical decision you want when I’m dead, but not until then. And I’ve gotta say, it’s shit like this - treating patients & donors like you know better - that make me not want to be a donor anymore. If I wanna donate my lungs to Hitler because he’s my grandpa and I love him, that’s not something you get to have a decision on.

      • andrewta@lemmy.world
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        9 days ago

        The fact that people are down voting you for saying in essence “my body, my choice”, is ironic for lemmy.

        • AeonFelis@lemmy.world
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          9 days ago

          Not really. All political factions try to sound like they are about principles when in reality they are about tribes.

        • DefederateLemmyMl@feddit.nl
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          9 days ago

          my body, my choice

          It’s a bit more complicated than that with transplants. Should people for example be able to sell their kidney to the highest bidder? That’s also “my body, my choice”. And should doctors be forced to participate in such a scheme?

          A transplant system should consider fairness, equality and possible abuse. Obviously I think it should be possible to donate to a loved one, but we should also be careful not to create a system where the rich get priority, because they can pay more, and where poor people could be financially pressured to give up their bodily integrity by having to sell an organ.

    • Notyou@sopuli.xyz
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      9 days ago

      Maybe he should, but maybe he is thinking “Fuck them, we tried to participate in the system. We had a living donor to go. What? Oh you have a ‘better’ recipient? Well, guess who doesn’t want to donate to a system that failed my loved one.”

      • Nuke_the_whales@lemmy.world
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        8 days ago

        The system didn’t fail, it worked as intended. If but mid 30s you’ve destroyed your liver with your alcohol addiction, it’s almost guaranteed you’ll slide back.

        Recipients can’t drink ever, and have to take meds for life. She was not a good candidate for a transplant.

  • IndustryStandard@lemmy.world
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    9 days ago

    Somehow I read the article thinkingshe had a kidney problem which we have two of.

    How can her boyfriend even donate his liver? Wouldn’t he die?

    • Leate_Wonceslace@lemmy.dbzer0.com
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      9 days ago

      Something interesting about the liver is that we can regrow it. So it might be possible to take a portion of a liver, put it in another person, and then both those pieces grow into a full or well-enough-functioning liver. I’m not a physician and I don’t know if such a procedure has ever been attempted.

      • areyouevenreal@lemm.ee
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        9 days ago

        I believe that’s an established procedure. Both the donor and the recipient regrow full livers from the portion they have. You can only donate once though because of how the new liver tissue is structured. I believe the arteries in the new one aren’t in the same place.

      • clickyello@lemmy.world
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        9 days ago

        maybe this is a joke going over my head but you just described a liver transplant. what blew my mind was learning that they don’t take the old liver out, they just squish the new one(the healthy liver sliver if you will) in and let it do it’s thing

        • Leate_Wonceslace@lemmy.dbzer0.com
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          9 days ago

          My understanding is that’s the case with kidneys as well. If there’s enough room, they don’t bother removing the old organ because that just introduces more chances to make a mistake.

    • humble peat digger@lemm.ee
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      10 days ago

      Wait, so if someone was ever an alcoholic - they gonna be denied? Even if they stopped drinking for many years?

      • SulaymanF@lemmy.world
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        9 days ago

        Doctor here who has referred patients for transplant. No. You must be six months sober to be eligible for the transplant list. There’s so few livers to go around, they need to be sure the recipient isn’t going to just break the next one.

        It’s rare to suddenly need a liver; they usually take months to fail and this gives the patient and doctor months of notice to try treating the failure first (including lifestyle changes and meds) before getting sick enough to go apply for a transplant.

        • areyouevenreal@lemm.ee
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          9 days ago

          Their boyfriend was willing to be a living donor for them. So you aren’t talking about a scarce resource here.

        • sailingbythelee@lemmy.world
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          9 days ago

          I used to trust HCPs, but I know many of them now and have heard them shit-talk and judge their patients for mental health issues and drug use (among other things). I would NEVER, EVER tell a doctor or nurse about any form of drug or alcohol use now, or any kind of anger issues that could possibly be interpreted as aggressive. Especially not in a hospital where everything gets recorded in an electronic chart and may be used against you in the future. Fuck that.

          • SulaymanF@lemmy.world
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            8 days ago

            I’m sorry you have such a low opinion, maybe you heard someone venting about their job after work?

            You really think lying about your drug use is safe? It’s dangerous to give many types of anesthesia if you’re on drugs or alcohol. We don’t particularly care if you use or not, we don’t tell police or family, you just need to be honest so we can do our job correctly.

            • sailingbythelee@lemmy.world
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              8 days ago

              If I was going under anesthesia for a planned procedure, I would not drink or use drugs beforehand. If it was an unplanned emergency, I guess it would depend on the circumstances, but you are citing an extreme circumstance. If someone is actively high at the time they end up in the emergency department, well, that’s bad luck and it might be wise to disclose since the staff will figure it out pretty darn quick anyway. Same if you are a severe alcoholic or opiate addict. That’s not what I’m talking about, though. I’m talking about when doctors or nurses ask you about it as a lifestyle question.

              You know as well as I do that the health care system classifies people in terms of their risk factors and then use that profile to make decisions about you. Once classified as a “drug user” in your chart, many doctors and nurses will treat you differently. They may or may not “care” from a moral perspective, and we know that they won’t tell family or police, but that won’t necessarily stop them from denying you necessary pain relief or deprioritizing you in triage. That’s the actual concern.

              There is absolutely no reason to tell a doctor if you use cannabis or engage in moderate alcohol use or occasionally use cocaine, LSD, or psylocibin. If you are prescribed a medication that has an interaction with a recreational drug, the doctor can simply tell you that. They don’t need to know if you use that drug from time to time. Only you, the patient, need to know that so you can avoid the interaction. More extreme forms of drug use are a different story, of course.

              Edit: Let me add one other overarching point. I think people are sick and tired of having doctors make decisions for them. I don’t need a nanny. I need information about risks and benefits in order to make an informed choice. Doctors rarely do that. Instead, they decide what should be prescribed, or not prescribed, regardless of the patient’s wishes. I know the reason is fear of liability, but here we are nonetheless.

              • SulaymanF@lemmy.world
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                8 days ago

                Ah, you think you know better than doctors. Many people think this. Many have bad outcomes with nobody to blame but themselves.

                I don’t care if you use cannabis, heck I can legally prescribe you some if you need it. Doctors are not law enforcement. I don’t bat an eye if you tell em you use cocaine, I’ll still give you morphine after surgery but I need to know you used cocaine so I can avoid beta blockers. You’re paranoid we’re judging you but you’re wrong. You’re not as rare as you think. We know you’re in pain regardless of your drug use and treat you anyway.

                Only you, the patient, need to know that so you can avoid the interaction

                Many idiots who died in hospital thought that too, which is why we make you sign consent forms so that your family can no longer sue us for your stupid mistake.

                It’s like you have no idea how doctors work and have an outdated idea of them. Your loss.

                • sailingbythelee@lemmy.world
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                  7 days ago

                  You misunderstand me. I don’t think I know better than doctors. Far from it. What I want from a doctor is information and informed choice, not a gatekeeper who makes decisions for me. As a group, physicians have been slow to adopt the patient-centered informed choice mentality that, for example, nurse practitioners and midwives have more thoroughly adopted.

                  The fact that you’ve doubled down here on calling patients idiots for being somewhat distrustful of the typical arrogant physician attitude confirms what I’m saying.

      • Lumisal@lemmy.world
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        10 days ago

        In most places, if they’ve been clean for 6 - 12 months, they are no longer considered alcoholic in terms of transplantation. Similar to Canada

        • i_love_FFT@lemmy.ml
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          9 days ago

          Notice that they never state she was an alcoholic. They also never atate she was a “high level” alcohol user. Just that she was an alcohol user.

          You can make your own assumptions about her alcohol use, but in general these rules would also excluse a “normal” alcohol user with a congenital liver failure…

      • buddascrayon@lemmy.world
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        10 days ago

        She literally quit when she was told she had a failing liver that could not recover. Just to be clear, there is absolutely no way in hell that she didn’t know she was on the way to killing her liver with her drinking because there are a plethora of signs long before you get to the point where alcohol has destroyed your liver beyond its own ability to repair itself. (Which is incredibly prodigious. The liver is the single most regenerative organ in the human body)

        So forgive me if I’m skeptical that she really would have stopped being an alcoholic after she received a liver transplant.

        IMO this was a tragedy of her own making and the money and effort in transplanting a liver would have been a complete waste. (Even one offered by her SO.) Especially when there is such a deficit of available organs and the surgeons who do the transplanting are needed for patients who aren’t likely to go back on the sauce 6 months later.

        • addictedtochaos@lemm.ee
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          9 days ago

          the pain of a cramping liver is excrutiating. if you deal with that kind of unrelenting never stopping pain und don’t stop drinking, you are addicted for sure.

    • johannesvanderwhales@lemmy.world
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      9 days ago

      And for good reason, really. The supply of livers is too small to save everyone who needs them, so they give them to the people most likely to have a successful outcome. Basically every lived given to one person is sentencing another person to death. That’s just reality with supply being what it is.

    • Zorque@lemmy.world
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      10 days ago

      Pump make blood go weee

      Liver and kidneys have to filter and sort various chemicals to keep them from poisoning your body.

      Also, dialysis is a thing, it’s just generally external cause of the complexity.

      • breetai@lemmy.world
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        10 days ago

        Artificial kidneys are in the test phases. Not sure when they’ll enter trials but it’s very complicated.

        • SoylentBlake@lemm.ee
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          10 days ago

          I just learned this last week that when someone gets a kidney transplant, doctors don’t remove the old one, they just shove it aside and patch the new one in…and honestly, that’s kind of fucking me up.

    • Floey@lemm.ee
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      10 days ago

      The liver is one of the most complex organs in the human body. It is responsible for a wide spectrum of toxin breakdown and chemical synthesis. The heart only needs to pump blood, though it’s uptime is very impressive. If your liver stops working you won’t die immediately but if your heart stops working your body will be starved of oxygen in mere minutes. Ultimately though what the heart does is mechanical and simple.